PKD Care Binder cover and sample pages List of sections inside the 31-page PKD binder Kidney function trend chart and imaging log pages
— PATRIMONY PRESS · KIDNEY CARE SERIES —

PKD Care Binder

PKD is a long game. Track it over years, not just appointments.

$17

Secure checkout on Etsy (shop: InnovativeFunds) · Personal-use license.

Polycystic kidney disease usually changes slowly, which means the trend matters more than any single visit. Yet results arrive one portal message at a time, and imaging reports are scattered across years and clinics.

This binder is built around PKD specifically: genetics and family screening, kidney imaging and volume, eGFR over time, tolvaptan liver-test monitoring, pain and cyst complications, and planning ahead.

What’s inside

31 pages, with a clickable table of contents and PDF bookmarks:

  • Emergency information page and cut-out wallet card
  • Medical summary, allergies, surgeries, and care team directory
  • My PKD at a glance: type, gene, imaging class, kidney volume
  • Family history and screening tracker, plus a genetic counseling checklist
  • Kidney imaging log (MRI / CT / ultrasound, total kidney volume, htTKV, class)
  • Kidney function trend: plot eGFR on a chart, with a results table
  • Lab results tracker with a “My target” column
  • Home blood pressure and weight log (2 pages); daily water and urine log (2 pages)
  • Tolvaptan monitoring log for liver labs, if prescribed
  • Pain and complication diary (flank pain, blood in urine, fever, stones)
  • Medication list and changes log; symptom diary; appointment log; questions for my care team
  • ER, hospital, and urgent care visit log; nutrition notes
  • Insurance and specialty-medication checklist; medical bills and EOB tracker
  • Planning ahead and transplant evaluation checklist; caregiver handoff sheet

Format & delivery

  • 3 PDF files, instant download
  • FILLABLE PDF — type, tick boxes, and save in Adobe Acrobat Reader (free), Apple Preview, or a modern browser
  • PRINT PDF — US Letter, ready for a 1-inch three-ring binder
  • EXAMPLE PDF — a fully filled-in sample binder (fictional patient) showing how each page is used
  • No physical product is shipped
Organizer only — not medical adviceThis binder is an organizer for your records. It does not provide medical advice. Targets are left blank for your care team to fill in. Always follow your nephrologist, pharmacist, and dietitian.

Free guide: Tracking polycystic kidney disease over time →

Questions

How do I receive my files?

Checkout is handled by Etsy. Right after purchase, Etsy emails you a download link, and the files stay available in your Etsy account under Purchases. Nothing is shipped.

Will the fillable PDF work on my computer or phone?

Yes. Type, tick boxes, and save in Adobe Acrobat Reader (free), Apple Preview, or a modern browser such as Chrome. On a phone or tablet, Acrobat Reader gives the most reliable form-filling.

I am not taking tolvaptan. Is the binder still useful?

Yes. The tolvaptan log is one optional section. The rest covers imaging, kidney function trends, blood pressure, family screening, symptoms, and appointments for anyone tracking PKD.

Can family members use it for screening?

The family history and screening tracker helps you record who has been screened, when, and how. Decisions about screening belong with your care team or a genetic counselor.